Understanding Endometriosis in the Workplace

Breaking the Silence: Understanding Endometriosis in the Workplace

Endometriosis is a chronic and often debilitating condition that affects 10% of women. Endometriosis can also affect transgender men, non-binary individuals, and gender-diverse people who have a uterus.

The impact of endometriosis extends far beyond personal health—it influences careers, workplace productivity, and overall well-being. Despite this, it remains one of the least understood and most overlooked health issues in the workplace.

Despite its prevalence, endometriosis is often dismissed as “just a bad period,” leaving many struggling in silence. In fact, research by APGG in People’s Magazine, shows that 1 in 6 with endometriosis are forced to leave their jobs due to the severity of their symptoms. This not only affects those living with the condition but also has economic consequences, with endometriosis-related costs amounting to an estimated £8.2 billion annually in the UK alone due to lost workdays, healthcare expenses, and diminished productivity.

For organisations committed to diversity, equity, and inclusion, recognising and addressing endometriosis in the workplace is crucial. Employees with endometriosis often experience chronic pain, fatigue, and mental health challenges, making everyday work tasks significantly harder. Without proper adjustments and support, many talented professionals may find themselves sidelined or unable to perform at their best.

In this blog, we will explore what endometriosis is, how it impacts individuals in the workplace, and—most importantly—what employers can do to foster a more inclusive and supportive work environment. From flexible work arrangements to awareness initiatives, small but meaningful changes can make a world of difference for employees navigating this challenging condition.

Let’s break the stigma, start the conversation and hopefully start to make a difference.

What are the types of endometrioses?

In the UK, the National Institute for Health and Care Excellence (NICE), British Society for Gynaecological Endoscopy (BSGE) refer to three types of endometriosis.

1. Deep endometriosis – found 5mm or more below the tissue surface. It can be found in locations such as the bladder, bowel and recto-vaginal septum (tissue separating the vagina and the rectum).
2. Peritoneal (superficial) endometriosis – is found mainly on the surface of the lining (the peritoneum)
3. Ovarian endometriosis (endometriomas) – is when endometriosis cysts are found in the ovaries.

What can an organisation do to support employees with Endometriosis?

Provide reasonable adjustments. For example:

• Flexible work arrangements – allowing employees to work remotely, flexible hours, or the option to work from home during flare-ups.
• Adequate rest breaks – providing additional short breaks throughout the day to manage pain and fatigue.
• Access to a comfortable workspace – offering ergonomic seating, standing desks, or a quiet rest area for those experiencing discomfort.
• Awareness and education – training managers and HR personnel to understand endometriosis and offer appropriate support.
• Menstrual health policies – implementing policies that acknowledge and accommodate the needs of those with menstrual health conditions.
• Coaching – provide your employees with strategy coaching so they can establish strategies to help them on bad days.

Raise awareness with colleagues:

• Awareness and education – training your managers and HR personnel to understand endometriosis and offer appropriate support.
• Raising Awareness in the workplace – providing resources and information for colleagues.
  • Becky Stearn, Client Consultant at neurobox share’s her lived experience living with endometriosis as a neurodifferent women. Listen to her recording.
• Open communication and support networks – encouraging a workplace culture where employees feel safe discussing their health without stigma or fear of discrimination.
• Set up an Employee Network (EN) focusing on women’s health. Sometimes it’s good just to have someone else to chat to and share your experience.

By fostering a supportive workplace, organisations can help employees with endometriosis feel valued, understood, and empowered to manage their condition while continuing to contribute effectively.

A combination of awareness, reasonable adjustments, and open communication can make a significant difference in both your employees well-being and overall workplace productivity.